Andre Daniel Paredes

Andre Daniel Paredes, PhD

Sr. Director, Clinical Data Science & Strategy

Building AI-powered platforms that transform how we understand and treat rare diseases.

About

I architect clinical data platforms and AI strategies that turn complex healthcare data into meaningful patient outcomes. With 15+ years leading enterprise initiatives across research institutions, health tech, and patient advocacy organizations, I specialize in the intersection of clinical informatics, machine learning, and healthcare operations.

At the Muscular Dystrophy Association, I'm driving a platform transformation that reimagines how patient registries operate: from legacy data collection to AI-powered, EMR-integrated clinical intelligence systems. My work focuses on establishing data governance frameworks, FHIR-based integrations, and scalable infrastructure that other patient advocacy groups can adopt.

Outside of work, I lead Neighborhood Soccer, a 501(c)(3) supporting youth development and community programming in Chicago's south and west side neighborhoods.

Family, faith, and continuous growth anchor everything I do. You can explore my family gatherings and personal reflections on faith and learning.

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Speaking & Thought Leadership

Patient Registries Reimagined: Experience, Evidence, and Evolution

MDA Clinical & Scientific Conference 2026

Session Chair (Upcoming)

MDA Patient Registry Sessions

MDA Clinical & Scientific Conference 2025

Session Chair

Areas of Expertise

Clinical AI & Data Science

LLM workflows, clinical data curation, NLP/computer vision for digital biomarkers, predictive modeling

Platform & Infrastructure

Cloud architecture (AWS, Azure), Databricks, Snowflake, FHIR/HL7 integration, data governance

Healthcare Operations

Patient registry oversight, HIPAA/FDA compliance, EMR-to-EDC pipelines, population health analytics

Executive Leadership

Data strategy, portfolio governance, vendor evaluation, cross-functional team leadership, stakeholder alignment

Initiatives & Impact

MDA Patient Registry Transformation

Muscular Dystrophy Association

Leading enterprise-wide transformation from legacy registry systems to an AI-powered clinical data platform with automated EMR integration, establishing governance frameworks and revenue-generating data services.

OpenMOVR

Open Science Initiative

Advancing open-source movement disorder research through collaborative digital biomarker development and data sharing frameworks. openmovr.github.io

OpenDBM

AiCure

Built go-to-market strategy for open-source digital biomarker platform, establishing research partnerships with 10+ global institutions. View on GitHub

NIH Data Commons

University of Chicago CTDS

Managed $5M+ portfolio of NIH-funded bioinformatics projects, developing cloud-based data commons infrastructure for biomedical discovery research.

Select Publications

The Biomedical Research Hub: A Federated Platform for Patient Research Data

Journal of the American Medical Informatics Association, 2022 Technical Project Manager

Barnes C, Bajracharya B, Cannalte M, et al.

Opening Access to Visual Exploration of Audiovisual Digital Biomarkers: An OpenDBM Analytics Tool

arXiv, 2022 Senior Author

Floricel C, Epifano J, Caamano S, Kark S, et al.

The New Zealand White Rabbit Animal Model of Acute Radiation Syndrome: Hematopoietic and Coagulation-Based Parameters

International Journal of Radiation Biology, 2021 First Author

Paredes A, Lindeblad M, Patil R, et al.